What you see is not what I get

High heels and handicaps

Myasthenia gravis is an invisible illness

This rare neuromuscular disease causing profound weakness is often misunderstood because weakness is invisible.

Weakness is invisible

You never know what will happen when you spend the night in a hotel room with a stranger. I needed a room for the first night of the conference and Jamie had an extra bed at the hotel. Turns out we were well-suited to be roomies. We both got a laugh over the fact that I didn’t realize she is in a wheelchair. She is highlighting various disabilities on her blog, Jamie’s Thots, and allowed me to contribute an article about what I wish people knew about myasthenia gravis (MG).

I could have written a book; I probably will.

What I wish people knew about myasthenia gravis #IHaveHeardofMG Click To Tweet
Invisible illnesses are hard for people to understand

I consulted my MG brothers and sisters around the world and posed the question, “What is one thing you wish people knew about myasthenia gravis?”  I tried to include every issue raised, hence enough material for a book.

2 Corinthians 1:6, “If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer.” NIV

I hope you will read my post (which has already been shared about 500 times!) on Jamie’s blog.

READ MY POST ON MYASTHENIA GRAVIS

Click HERE to read my guest post.

Thanks for the support from fellow MGers #IHaveHeardofMG Click To Tweet
I WOULD LOVE TO CONNECT

If you are visiting my blog, I would love to send my weekly posts to your inbox. I’ll need your email address above the JOIN ME ON THE PORCH button.

I would love to hear from you on my Facebook page too, especially if you or someone you know has myasthenia gravis or a related chronic illness.

I have found blessings in adversity and want the opportunity to encourage you.

And speaking of Jamie, I recently interviewed her on My Journey of Faith radio broadcast. You can listen HERE.

2 Corinthians 4:17, “For our momentary light affliction is producing for us an absolutely incomparable eternal weight of glory.” HCSB

Sharing spreads awareness. Thanks.

 

It's more fun when you join the conversation

  1. How quick we are to judge others by what we see. You have reminded us to have a heart of compassion. I think this applies to many hurting people , we see negative behavior but not the causes…pain and brokenness. Open the eyes of my heart LORD.

  2. Very true. It is so easy to quickly judge. I feel that severe mental illness falls into the same category. It isn’t ok to talk about. There is judgement. When I see the homeless, I think,” but for the grace of God, that could be someone I love “. I pray for healing. If not , then His grace to handle all that ill health brings into our lives

  3. Sometimes its frustrating to hear someone say things like, Oh, yay, you are better, you don’t have to use your cane or walker anymore, when I just left them in the car, to open the door to hug their neck, or those who come up to you while you are walking with your walker in the store and say, “what is that for? I thought you were a physical therapist” I explain, I AM an physical therapist, not was, I have a neuromuscular disease, but I am still a PT.