It sounds different from inside my head. I guess I am used to hearing it that way. When I hear it outside of my head it sounds totally foreign. They tell me it is an exact reproduction, so I will have to trust them. Anyway, I still don’t like the way it sounds.
It is my voice and it is telling my story. Frankly, I am tired of it. Nevertheless, it is an inspiring story and others need to hear it. So I tell it. Honestly, I need to hear it too. I need to hear the joy despite the loss. I need to hear the purpose in the pain. You see, I know it is real and I know it lasts, but occasionally I need to be reminded. So I tell the story. And I listen to my own voice, it just sounds different outside of my head.
I have a few events coming up, so if you live around the state and would like to hear my complete story in person then visit my Facebook page for dates and locations. My story makes me laugh. It continues to amaze me. It causes me to worship the God who holds me in the palm of His hand. And it makes me cry. The first time I shared my story from start to finish, my daughter says she fought the urge to rush onto the stage, grab the microphone and insist,
IT’S ALL TRUE!
It may seem exaggerated, but it’s not. It really is all true. I hope it encourages you, because it encourages me and right now, I for one need it.
Isaiah 41:13, “For I am the Lord your God who takes hold of your right hand and says to you, Do not fear; I will help you.” NIV
Physically, I have improved. I have probably achieved the “near normal” life people with myasthenia gravis are able to live. That is if you consider driving a car, grocery shopping solo and an occasional short bicycle ride near normal. Maybe I am greedy. I would like to be rid of the fatigue in my jaw which kept me from eating all of the cheese dip last night, the heaviness in my arms and especially the severe double vision I am having today. Most often I see one clear and one hazy image, today I see complete duplicates. Of course closing one eye corrects it in case you thought I was winking at you. Some days are worse than others, which is a true statement emotionally, spiritually and physically.
Psalm 94:18-19,”If God hadn’t been there for me, I never would have made it. The minute I said, ‘I’m slipping, I’m falling,’ your love, God, took hold and held me fast. When I was upset and beside myself, you calmed me down and cheered me up.” MSG
You need to know I am okay. But you also probably need to know I have good days and bad days. It isn’t continuous peaches and roses for me and I suspect it isn’t for you either. I figured I just needed to let you inside my head and be real, so you would know and maybe not feel alone in whatever circumstances you are struggling with. After all, we are in this journey together.
Galatians 6:2, “Carry one another’s burdens; in this way you will fulfill the law of Christ.” HCSB
Click here to listen to my recent online radio interview on My Journey of Faith
Every once in while I would like to send you a few extras. Initially I am offering my prescriptions for anxiety, but you will have to sign up separately to receive them.
Photo credit: StockSnap